In 2010, I was diagnosed with Primary Progressive Multiple Sclerosis (PPMS). PPMS is a rare and aggressive form of MS that affects the spinal cord and brain. There is no cure for PPMS, and it can be incredibly debilitating.
I was 42 years old when I was diagnosed, and I had been experiencing symptoms for several years. At first, I thought I was just getting older. I was tired all the time, my balance was off, and I had trouble with my fine motor skills. But as my symptoms progressed, I knew that something was seriously wrong.
I went to my doctor, and after a series of tests, I was diagnosed with PPMS. I was devastated. I had never heard of PPMS before, and I didn't know what the future held.
But I was determined to not let PPMS get the best of me. I started physical therapy, occupational therapy, and speech therapy. I also joined a support group for people with MS.
The support group was a lifesaver. I met other people who were going through the same thing I was, and I was able to share my experiences and learn from others.
With the help of my therapists and support group, I was able to manage my symptoms and live a full and active life. I continued to work, I traveled, and I spent time with my family and friends.
But in 2015, my symptoms started to get worse. I lost my ability to walk, and I had to start using a wheelchair. I also had trouble with my speech and swallowing.
I was afraid that I was going to lose my independence, but I was determined to not let that happen. I continued to go to therapy, and I started using assistive technology to help me with my daily activities.
Today, I am still living with PPMS, but I am not defined by my disability. I am a wife, a mother, a grandmother, and a friend. I am also an advocate for people with disabilities.
I share my story because I want others to know that they are not alone. If you have been diagnosed with PPMS, or any other chronic illness or disability, there is hope. You can live a full and active life.
